Be kept informed

Subscribe to Kath's informative newsletter

* indicates required

Dare to be Vulva Aware – Women speaking out

MY VULVA CANCER JOURNEY – by Lyn Ellard

January 2017 I had a L) Hernia operation, all went well and recovery was good. In February 2017 I developed an itchy burning in what I now know as the Vulva area, I went to my GP. on another matter but told her about the symptoms I had, she asked me to do a urine sample which I did. A few days later my GP phoned me to say I had a bladder Infection and she would leave a prescription at the reception desk for me to get anti biotics and some Canesten cream. The antibiotics and cream did help for a while, but the itching and Burning still continued.

Over the months each time I went to the GP complaining of the same symptoms only to be given script for Canesten cream which I would get over the counter at the chemist attached to the Medical Centre. Sometime later in the year I noticed on the R) side of the Vulva it was very sore and felt like there was an open sore, sometime it would bleed.

Being a women and 76 years old I took the word of the GP that it must be a bladder infection and just continued on, I would use Vaseline, Canesten cream and yoghurt to ease the pain especially when I had to go to the toilet.

Never in all the times I visited my GP and complained of my systems did she ever suggest an examination of the vulva area, over the summer months it became so painful that if I was home I would go without snickers as it was comfortable without them.

It was in March after I returned from a holiday that it got so bad I could not take any more of the pain, and I had a feeling it was not just a bladder infection it had also started to swell up above the hair line of the area.

On the 29th March I went to see a new GP at the same medical centre as my usual GP was not available, she did examine me, said the vulva area on the R) side was ulcerated and not a good colour, had to do a urine test and she also took swabs.

Went back for results on the 4th April 2018, the results were all ok, but she gave me a referral see a Gynaecologist at Murdoch, the Gynaecologist phoned me to say he was referring me to a Gynaecologist/Oncologist.

On the 17th April in the evening I developed a lump in my R) groin and it was painful, in the morning the lump had moved up to the top of the groin. I made an appointment to see the new GP. She took one look and sent me to Fiona Stanley Hospital.

At the hospital they did an Ultra Sound and CT Scan. As I wanted my own surgeon I had to be transferred to SJOG Hospital Murdoch. I was admitted there on the 18th April. While I was there they did more test and also did a biopsy of the Vulva area. I was a patient for 4 days.

While in the hospital the Gynaecologist/oncologist visited me and an appointment was made to see him in his rooms on the 4th May. I received a call from the Surgeon to come and see him still not thinking much about it.

I saw him on the 26th April. My daughter Amanda came with me, he was very nice about everything, he said the results from the Biopsy was that I had R) Lymph node cancer and he said they think the Primary started in the Vulva, many people asked me how I felt, I think I just had a numb feeling and I let Amanda ask all the question she was and has been my rock over this time.

I visited the Gynaecologist/Oncologist on the 4th May, he did a biopsy under a local anesthetic in the surgery it was very painful but it needed to be done quickly. He told me the vulva area was the primary and the R) Lymph Node area was the secondary. Because I already suffer from Lymphedema he was hoping to only remove some of the lymph nodes.

I was admitted to SJOG Murdoch hospital on the 14th May. I had a R) Vulva operation where they removed all the Vulva. All the R) lymph nodes had all joined together to form a ball so I had to have all R) Lymph Nodes removed, I became very upset and angry about it all especially with the G.P. as had she checked it out sooner I may not have had to have such major surgery. I spent 13 days in hospital. I was told I would have to have chemo and Radiotherapy. After coming home from hospital every morning for 5 weeks I had to have Health Care then Silver chain to come and give me a blood thinner injection into the stomach and a flush for the vulva area.

On the 13th June I had a PET scan this had to be done before I started my Chemo/Radiotherapy treatment, it was done at SJOG Hospital Subiaco.

I started my chemo on Monday 2nd July, I have to have chemo at SJOG Hospital Murdoch every Monday for 6 weeks. Tuesday 3rd July I started my Radiotherapy at Fiona Stanley Hospital this is every day (Monday to Friday) for 6 weeks. During the Radiotherapy some days I just did not want to go and had to push myself through the treatment, it was a very stressful 6 weeks.

It was after the 4th treatment that I became very unwell in the evening, Tom (Husband) drove me to SJOG Murdoch emergency department, I was admitted to hospital for 4 days with a chest infection, I had to still go to my Radiotherapy and that week I only missed 1 appointment. I am still struggling with it all and have my angry moments towards my GP but getting better at it all.

On the 8th October I went to SJOG Hospital Subiaco for a final PET and CT scan.

Went to S.JOG Murdoch on Wednesday 10th October for my appointment with the Chemo Specialist o get my results from the PET scan. What a wonderful feeling when the Specialist told me all was good, feeling so blessed and happy with the results. I have a small node on the lungs but the specialist is not concerned at this time. I will go back to see him in February 2019 and have a CT scan before I see him. I feel a heavy load has been lifted and I can now look forward to a happy life ahead.

My advice to all women, you have the right to ask for an examination or a second opinion. If by writing my story I can save one person from what I have had to go through it is all worth it.

 

 

Reader Interactions

Comments

  1. I am not sure where you’re getting your info, but great topic.
    I needs to spend some time learning more or understanding more.
    Thanks for fantastic information I was looking for this
    info for my mission.

  2. Hi exceptional website! Does running a blog similar to this
    take a large amount of work? I’ve no understanding of computer programming but
    I had been hoping to start my own blog soon. Anyways, if you have any
    ideas or tips for new blog owners please share. I know this is
    off subject nevertheless I just had to ask. Appreciate
    it!

  3. Simply desire to say your article is as astounding.
    The clearness in your post is simply excellent and i could assume you’re
    an expert on this subject. Well with your permission allow me to grab your feed
    to keep up to date with forthcoming post. Thanks a million and please keep up the gratifying work.

  4. Hey there! I know this is somewhat off topic but I was wondering which blog platform are you using for this
    website? I’m getting sick and tired of WordPress because I’ve had problems with hackers and I’m
    looking at options for another platform. I would be fantastic
    if you could point me in the direction of a good platform.

  5. What i do not understood is in reality how you’re not really a lot more neatly-appreciated than you might be right now.
    You are so intelligent. You know thus significantly when it comes to this matter, produced me personally consider it from a lot
    of numerous angles. Its like women and men don’t seem
    to be interested except it is one thing to accomplish with Woman gaga!
    Your individual stuffs nice. All the time handle it up!
    adreamoftrains best web hosting 2020

  6. I absolutely love your website.. Excellent
    colors & theme. Did you create this website yourself?
    Please reply back as I’m looking to create my very own site and would love to learn where you got this from or
    exactly what the theme is named. Cheers!

  7. Greate pieces. Keep writing such kind of information on your page.
    Im really impressed by your blog.
    Hi there, You have performed an excellent job. I’ll definitely digg it
    and individually suggest to my friends. I am sure they’ll be benefited from this website.

  8. Generally I don’t learn article on blogs, however I wish to say that this write-up very forced me to try and do so! Your writing style has been surprised me. Thanks, very great article.

  9. First of all I would like to say great blog! I had a quick question which I’d like to ask if you don’t mind.
    I was interested to find out how you center yourself and clear your thoughts prior
    to writing. I’ve had a difficult time clearing my mind
    in getting my thoughts out. I truly do take pleasure in writing but it just seems like the first
    10 to 15 minutes tend to be wasted just trying to figure out how to begin. Any ideas or hints?
    Cheers!

  10. I am not sure where you’re getting your info, but good topic.
    I needs to spend some time learning more or understanding more.
    Thanks for great information I was looking for
    this information for my mission.

  11. At this time it seems like Expression Engine is
    the best blogging platform out there right now.
    (from what I’ve read) Is that what you’re using on your blog?

  12. We have a new home with sprinkler heads in our finished baement.
    They are everywhere! Should I be considered about one of my husband’s darts bouncing off the steel dividers, hitting
    that little glass in the sprinkler and flooding my
    basement? Is there any way to protect the
    sprinkler? Thanks guys!!

  13. Thanks , I’ve recently been searching for information approximately this subject for a while and yours is
    the greatest I’ve came upon so far. However, what in regards to the conclusion? Are you sure concerning the
    source?

  14. Thank you for another magnificent post. Where else could anyone get that type of info in such a perfect way of writing? I have a presentation next week, and I’m on the look for such info.

  15. What i don’t understood is if truth be told how you’re not really a lot more smartly-liked than you may be right now. You are so intelligent. You recognize therefore considerably with regards to this matter, produced me individually believe it from so many numerous angles. Its like men and women aren’t interested until it is something to do with Woman gaga! Your own stuffs outstanding. Always take care of it up!

  16. Hey There. I found your blog the usage of msn. This is a really neatly written article. I will make sure to bookmark it and return to read extra of your useful info. Thank you for the post. I will definitely comeback.

Leave a Reply

Your email address will not be published. Required fields are marked *