Its wonderful to see others now speaking about this important issue for all women and for men to better understand the correct terminology.
Check out this blog post. A great read for all.
Changing the landscape for women with Gynaecological, Sexual and related Mental Health Issues
Its wonderful to see others now speaking about this important issue for all women and for men to better understand the correct terminology.
Check out this blog post. A great read for all.
A good time was had by all with my presentation at the Progressive Women Esperance. I just love the responses and stories shared with one and other. https://www.esperanceexpress.com.au/story/5432689/womens-health-promoted-in-esperance/?cs=1520.
I distributed undies to many of the Community Resource Centres along the 800km trip.
I was shocked to read the following statistics about Endometriosis.
I would love to hear your comments about this. We must help these women who often suffer in silence, unsupported, to find a stronger voice so that more can be done to support them.
Follow this link to read the article published on WA Today website.
Check out these stats as an example…
Around 1 in 10 women suffer endometriosis. Which is slightly more than the number of men who suffer erectile dysfunction and about the same rate that men and women live with diabetes and asthma.
PubMed is a database of medical research. It currently lists 33,103 clinical trials on diabetes, 13,762 on asthma and 1,958 on erectile dysfunction. And 947 clinical trials studying endometriosis.
In 2016 the Australian National Health and Medical Research Council allocated more than $14 million to asthma research, $64 million to diabetes research and $837,433 to endometriosis research.
I think from this you can see why I am so passionate about making a difference. When is the medical profession going to take women’s health seriously? We need to break down the stigmas associated with women’ health. Why should a woman have to wait longer to get pain medications? Is it because she has a greater pain threshold. Does she have to be at the limit of her endurance before she is entitled?
So many questions that need answers that lead to real change if we are going to see a difference. This is why we need IGAD!
Thanks to Chris Bath for the opportunity to interview me last night on ABC Radio NSW to help share my message.
http://www.abc.net.au/radio/sydney/programs/evenings/evenings/9381430
https://www.facebook.com/1988770434729474/photos/pcb.1988773474729170/1988773331395851/?type=3
A colleague sent this article to me which represents all that I stand for given that millions of women have GYN health issues, with many standing alone. Alone we sit together we make a mighty roar. The time is right now for these women’s stories and suffering in silence to come to the surface.
Why I started the International Gynaecological (GYN) Awareness Day
by Kath Mazzella OAM
There were five major events that led me to create the International GYN Awareness Day.
Diagnosed with Gynaecological Cancer
When I was diagnosed with Vulva cancer, I endured a tremendous process of grief and personal physical and emotional struggle with first the diagnosis and then with the terrible suffering of the surgery and life post-surgery. Excuse my frankness, but at first, I was shell shocked that I had to choose between dying and living without my ‘female sacred soul’ for the sake of my family, as they wanted to cut out my clitoris, lymph glands and vulva. The first thoughts after diagnosis were, “What will I be without my genitals?”, “What about my sexual life?” and “Will my husband leave me?”, which then progressed to “What am I?” and “Where do I fit in society?”
Discovered Daughter had Endometriosis and Poly Cystic Ovarian Syndrome
Then a short time after my surgery I discovered that my daughter had Endometriosis and Poly Cystic Ovarian Syndrome (PCOS). Through ignorance, I had been unsympathetic and unsupportive of my daughter, secretly thinking ‘suck it up, princess, we all have pain with our periods’. I had little knowledge of gynaecology risks and symptoms, so I was mortified to learn that my daughter had been suffering severe levels of pain and doing that suffering relatively alone. She had joined the ranks of the millions of women in the world who suffer in silence with these conditions.
Someone Who Shared My Experience
I met a woman who had been through the same experience as me. I realised that there was healing in sharing stories and it was really important. I also realised that knowledge is power and that often the medical profession holds all the knowledge and only tell the patient what they think the patient needs to hear, not recognising that the patient might want deeper level information or access to others going through the same or similar challenge. I recognised that this needs to change. That there needs to be an opportunity for all to come together and share information.
Advertised in Prominent Women’s Magazine
Placing an advertisement in a prominent women’s magazine, I was flooded with letters from women who were suffering in silence expressing their loneliness, shame, embarrassment and frustrations. It again impressed upon me how women are geared towards communal living and needed the opportunity to come together for healing and sharing.
Started a Support Group for Women – GAIN Inc
I started a support group for women, which morphed into GAIN Inc. (Gynaecological Awareness Information Network Inc.) It was as we were building this group, that I had the thought about creating a Gynaecological Awareness Day to help break down the stigmas and barriers and bring the medical profession, men and women to the same table to share our experiences and our knowledge. As I explored this idea, Senator Amanda Vanstone informed me that I could just name the day and make it happen. So, I decided to make it an International Day and so the International GYN Awareness Day on 10th September was birthed.
The key messages about this day are:
I am now looking for CHANGE CHAMPIONS who will embrace my message and run with it. If you are someone who is passionate about making a difference, willing to follow simple instructions to achieve big results, I need your help to make the International GYN Awareness Day an International reality so that we can start this conversation in every corner of the globe.
How to get involved:
#UBU #UndiesForBetterUnderstanding #KathMazzella #Gynaecology #IGAD #Women #Men #InternationalDay